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The original was posted on /r/cfs by /u/Melodic-Earth-8072 on 2026-04-24 08:27:34+00:00.

Hey guys, I’m just over 1.5 years into having ME/CFS. I began as moderate, then slowly became more severe last autumn and now I’m completely bedbound on my way to very severe. It just feels like each month I get worse.

Despite pacing, taking supplements and supporting my body the best I can, I’m still just gradually worsening.

Is anyone else or has anyone else been in the same boat? What helped you in the end if anything did help?

I feel really scared :( I also didn’t tolerate LDN as it massively worsened my migraines even at a lower dose.

I think I just really need to hear a bit of hope right now. Thank you very much. Internet hugs to you all