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The original was posted on /r/cfs by /u/V0rtexGames on 2026-04-23 15:54:29+00:00.

Estimates on the prevalence of disease vary, but even going conservative with a 0.5% prevalence in the USA, this means 1 in 200 people. How many people do you know? More than 200? Where are all of the people with ME?

It feels like there should be many visible based off of these numbers, so many more people with ME visible than there actually seems to be. Almost as if there is a good chunk of individuals who are completely cut off from each other, isolated. There could be someone down your block housebound and you could never know.

It is just that often times I find myself thinking, where is everyone, they have to be somewhere. Was wondering if anyone else has these same sort of thoughts.